A key part of our mission in tide – together in dementia everyday is to campaign for better support for carers of people with dementia and influence government, legislation, research and policy.
We are currently working on an exciting research project in collaboration with University of York’s Social Policy Research Unit (SPRU) and Dementia UK; facilitating and conducting the first large scale independent national study looking at support for carers of people with dementia, which is being funded by the National Institute for Health Research. Carers who join tide will receive invitations to take part in this research and other nationally important projects.
The aim of this survey is to find out whether there are any differences in how carers feel in areas with different types of support services. The results from this survey will help service planners to make more informed decisions about what support and services to provide to carers of people with dementia. It will also help people affected by dementia and the professionals who work with them to make the case for the most effective services in their area.
The national survey (developed with carers and taking no longer than 30 minutes) will ask carers:
- What services they use
- How they feel about their quality of life
- How they feel about their health
- How confident they feel in their ability to handle various aspects of caring
- How much time they spend on caring tasks
We would really appreciate it if could disseminate this information to carers of people with dementia that are in contact with and encourage them to join tide by signing up using the following link: http://www.tide.uk.net/#sign-up
If you would like further information on this survey or any other research projects we are engaged in please contact Louise Langham at tide – together in dementia everyday part of the Life Story Network) on 07960 503783 or email Louise@tide.uk.net